9 Things People Living with Dementia Want You to Know

Dementia can be a difficult and isolating experience for anyone living with the condition. It involves dramatic changes in a person’s life and can lead to anger, fear, and confusion.

People who are living with dementia don’t often have their voices heard in conversations, especially when it comes to the issues that affect them directly. As a result, caregivers don’t always know what kind of help or support these individuals need, which makes it even more difficult for them to cope with the condition.

While no two people with dementia will have exactly the same experience, there are some commonalities that make understanding the condition much easier. In this article, we aim to share insight from those who live every day with dementia – revealing what they want you to know in terms of caring for them and helping them cope better with their struggle.

1. It’s not just an older person’s disease

Dementia is often associated with aging, but it can affect people of any age. In fact, there are many cases of young-onset dementia, which affects individuals under the age of 65.

2. It’s not just about memory loss

Memory loss is one of the most common symptoms of dementia, but it’s far from the only one. People living with dementia may also experience changes in behavior, difficulty with communication, and difficulty with everyday tasks.

3. It’s not a sign of weakness

Living with dementia can be incredibly challenging, but it doesn’t mean that the person is weak or incapable. People living with dementia are often strong and resilient, and they should be treated as such.

4. It’s important to stay connected

Social isolation is one of the most difficult aspects of living with dementia. It’s important to stay connected with those who are living with the condition, even if it’s just through small gestures like a phone call or a visit.

5. It’s okay to ask for help

Living with dementia can be overwhelming, and it’s important to remember that it’s okay to ask for help. Whether it’s from family, friends, or professional caregivers, having a support system is essential for those living with dementia.

6. It’s important to be patient

Dementia can cause confusion and disorientation, so it’s important to be patient and understanding when communicating with someone who has the condition. It may take longer for them to process information or respond to questions, but it’s important to remain calm and supportive.

7. It’s not a death sentence

Living with dementia can be difficult, but it doesn’t mean that life is over. People living with dementia can still lead meaningful and fulfilling lives, and it’s important to remember that there is hope for those who are struggling.

8. It’s important to stay positive

Living with dementia can be a difficult and isolating experience, but it’s important to remember that there is still joy and beauty in life. Staying positive and focusing on the good things can help those living with dementia cope better with their condition.

9. It’s okay to talk about it

Dementia is often seen as a taboo subject, but it’s important to remember that it’s okay to talk about it. Talking openly and honestly about dementia can help reduce the stigma associated with the condition, and make it easier for those living with dementia to get the support they need.

Discover a Continuum of Care at Oasis Dementia Care

At Oasis Dementia Care, our mission is to provide the highest level of care for our neighbors and to also assist Tristate families that are dealing with dementia. We strive to get to know you and we care about providing the best care possible. If you’re interested in learning more about the community at Oasis Dementia Care, please contact us.


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